8:55-9 am: Opening Remarks
9-9:20 am: When Rest Isn’t Resistance: Lessons about “Rest” and “Self-Care” from People with Myalgic Encephalomyelitis
Victoria Copeland (This presenter will be virtual)
When rest is (not) resistance, when rest is pri(son)ority. Nearly 3.3 million people suffer from ME/CFS in the U.S., a disease that causes profound physical and cognitive disabilities. Although named “Chronic fatigue syndrome”, the disease is anything but restful. Influenced by the Disability Justice principles, this presentation will share results from a study on ME/CFS to: problematize the concept of “rest”, emphasize interdependence and cross-disability solidarity, and expand ideas about accessibility and care.
This session will be pre-recorded.
9:20-9:40 am: A Posthumanist Ethics of Care: Theorizing Vulnerability, Interdependence, and Discontinuity as Insurgent Politics
Evan Wicklund
In this presentation, I argue that while contemporary critical disability scholarship is grounded in the pursuit of emancipatory politics, posthumanist scholarship introduces a theorization of disability that prioritizes interconnectivity (yet recognizes the inevitability of discontinuity) between humans and other actants. While we are all unavoidably connected to others, bodies which require intimate personal care, assistance with communication, and interpersonal support to complete both daily tasks and life planning, exemplifies the extent of human interdependency.
9:40-10 am: Edgework: Pain, Politics of Belief, and the Failure of Disability’s Moral Economy
Maria Rovito
Persistent, disbelieved pain destabilizes the optimism that anchors much of disability theory. This presentation contends that feminist disability studies must treat relief as a justice imperative, expanding the field to include bodies whose primary experience is suffering rather than affirmation.
10-10:30 am: Q&A/Discussion
Moderator: Kenya Loudd